Today I have a guest post from Ido Kedar, a non speaking autistic young man who has written two books.
This is Ido’s second book, In Two Worlds.
Seven-year-old Anthony has autism. He flaps his hands. He makes strange noises. He can’t speak or otherwise communicate his thoughts. Treatments, therapies, and theories about his condition define his daily existence. Yet Anthony isn’t improving much. Year after year his remedial lessons drone on. Anthony gets older and taller, but his speech remains elusive and his school lessons never advance. Life seems to be passing him by. Until one day, everything changes.
In Two Worlds is a compelling tale, rich with unforgettable characters who are navigating their way through the multitude of theories about autism that for decades have dictated the lives of thousands of children and their families. This debut work of fiction sheds light on the inner and outer lives of children with nonspeaking autism, and on their two worlds. As one of the only works of fiction written by a person with non-speaking autism, it offers readers an unprecedented insider’s point-of-view into autism and life in silence, and it does so with warmth, humor and a wickedly sharp intellect.
Now over to Ido…
Imagine that you can’t speak, handwrite or gesture because your body can’t move the way you want it to due to a breakdown in communication between your thoughts and motor system. You are born this way, so no one knows you are smart. Your body betrays you through erratic or impulsive movementsthat convince theprofessional experts that you lack understanding of language or even awareness of the world around you. You can’t tell anyone the truth about who you are; that you are present, smart but trapped.
This is the experience of Anthony, the hero of In Two Worlds. He is a boy, trapped by autism, unable to communicate, and living in two distinct realities. He lives in his mind, isolated from others, intoxicated by overwhelming sensory experiences, and entertained by jokes he can only share with himself. It is a solitary, sensual life. Nearly hallucinatory visual input at times makes his inner world an escapist wonderland. His other world is less enticing, inundated in therapies and remedial education with specialists who have no idea that the strange boy is a thinking boy. This is monotony and tedium caused by good intentions.
My life has many parallels to Anthony’s, though he is not me. I am real and he is not. But I too can’t speak. I too move erratically. I too was thought to be an empty head when I was young. And I too made a breakthrough when I learned to touch letters to communicate. I lived an escapist life as a boy. My inner autismland offering a reprieve from the pointless boredom of simplistic drills that mocked my intelligence and proved my stupidity.
But once I learned to control my hand to type out my thoughts at the age of seven, my world opened. Gradually I made my way into the world of neurotypical education, my ideas liberated from their prison within my mind. I observed my lonely status in school. I was the only nonspeaking autistic in regular education. My autistic peers stayed in remedial class. No one bothered to inquire if they too might possess the ability of typing out letters with one finger to express ideas. The assumption was that I was an anomaly.
I began a journal to express my feelings at this tough time in my life. I was twelve years old. For three years I wrote and my journal developed into an insider’s view and explanation of nonspeaking autism. This became my memoir and first book, Ido in Autismland. It has had a bigger impact than I could have ever hoped. Parents have used my book as their path to communication with their children. Teachers have rethought theories, and autistic people have read that they are not alone.
In Two Worlds is my second book, but unlike Ido in Autismland, it is fictional. It feels real so people ask me if it is my story. It is the story of autism as seen through my autistic eyes, but it is fiction, nonetheless. I waited a long time to communicate. A long time before my first conversation. But I was seven. Still young. My protagonist, Anthony, waited until he was sixteen! Imagine going all the way to high school age with not one conversation ever, with no one, not even your own family knowing you had a thinking mind.
My experiences made me write true experiences for Anthony. I understand the people who populate his life and the way he is treated. I understand his sorrow, anger and budding hope. I understand the obstacles he faces when most of the professionals dismiss his communication as fantasy and fallacy.
The journey of Anthony tells the truth about autism, and because it is fiction it is all the more powerful. Through fiction you ride the schoolbus with Anthony, seeing streams of light and color with him. Through fiction you hear his thoughts, when no one else knows he has any. Through fiction you overcome the most basic human need with him, to connect with others and to share ideas. Anthony teaches that not talking is not the same as not thinking. He shines a light on the most maligned and misunderstood people, those who have historically been called “dumb,” because words don’t tumble from their mouths.
In Two Worlds is a journey into the life of a person who lives intelligently inside and stupidly outside. It is an insider’s perspective into nonspeaking autism and this is something wholly new to literature.
About the Author
Imagine being diagnosed with a disease that relegates you to the sidelines of life. You are seen as different, maybe even dumb. You are unable to communicate with others and feel trapped in a body that fails you every step of the way. Even those who are with you don’t realize what you are capable of. You could easily grow depressed and remain a silenced outcast. Well, one young man is fighting back. He has found a way to overcome so many obstacles and to share an inspiring story on behalf of those with severe autism — and for all who cannot speak for themselves.
Meet Ido Kedar, a phenomenal 23-year-old Californian who, through the saving grace of technology and perseverance, now has a voice in his life and is using it to lobby for huge changes. Through the use of an iPad and other devices, Ido has learned to communicate with others despite not being able to speak. He has written two books and serves as a board member for a non-profit group that advocates on behalf of all non-speaking humans.
“Ido’s story is one of triumph of the indomitable human spirit,” says Tracy Kedar, his mom, who is also a mental health therapist specializing in helping non-speaking autistic individuals. “He is an inspiration to anyone who has struggled.”
Ido is believed to have written the first novel by a non-speaking autistic person, In Two Worlds, which was praised by Kirkus Reviews and Publishers Weekly Booklife Prize. He also is the author of a book at age 15, Ido In Autsimland, a stunning memoir that brings tears of frustration and joy from every reader. Completely silenced for the first seven years of his life – and now still without the ability to speak save for the use of technology – Ido remains quiet no more. His human interest story also provides insights on parenting, education, and how the experts fail to treat those who can’t speak for themselves.
“I hope to have people outside the autism community discover my books,” says Ido. “I believe they have the potential to shed light on the most misunderstood people – non-speakers – who are trapped by their own bodies. In reviews, readers compare my novel to other major works that exposed prejudice and ultimately led to societal change. Perhaps society is ready for a breakthrough.”
You can find out more on Ido Kedar’s website
- Author: Jerry Kaczmarowski
- Published: April 2015 by Jerry Kaczmarowski
- Category: Young Adult, Techno Thriller
Abandoned by her husband after the birth of their child, Jane Dixon’s world is defined by her autistic son and the research she does to find a cure for his condition. She knows her work on animal intelligence may hold the key. She also knows that the research will take decades to complete. None of it will ultimately benefit her son.
All that changes when a lab rat named Einstein demonstrates that he can read and write. Just as her research yields results, the U.S. government discovers her program.
Scientist Jane Dixon lives for her son, Robbie, who is autistic and prone to seizures, and her research work into animal intelligence with a view to finding a cure for autism. Although sure her findings will be too late to benefit her son, her hopes are raised when the comprehensive variety of tests on one particular rat produces amazing results. Einstein, as the rat is aptly named, develops the ability to understand dialogue, think for himself and communicate using the text facility on a phone. And not just any phone, Einstein is partial to iPhones, and dislikes Androids.
Jane acquires another test subject, a one-eyed German Shepherd called Bear, who hasn’t had the best start in life to begin with. Bear and Einstein develop a love/hate relationship as their respective intelligence increases immeasurably, however Einstein’s skills are more advanced and he never lets an opportunity pass to make a joke at Bear’s expense. These two are so comical together and make the story for me, and I desperately wanted a happy ending for both of them, as well as Robbie.
The rat reached out a skinny arm and scratched at the dog’s front leg. The dog shivered as the rat dug his sharp claws into his front arm and climbed up to his shoulder. He growled at the minor discomfort, but the rat continued his slow, methodical climb to the dog’s head. The dog lifted his nose up to the green panel, and the rat pushed the glowing squares with his tiny claw.
At the sound of an audible click, the dog pushed through the door to their kennels. They raced to their respective cages and slammed the doors shut, oblivious to the security camera in the fish eye enclosure above them.
Although Jane is always open to offers of extra funding for her work the interest shown by The Centre for Disease Control and the Military is not quite what she has in mind. One has the intention to shut her program down and the other to use her research to enhance the intelligence of military dogs. Having no choice but to comply and work with the two agencies actually gives Jane the answer she’s been seeking as to why results differ so much from one rat to another. For the test serum to work, the subject has to be at a certain stage of development. Jane, in total mother mode, takes a momentous decision she has cause to regret as the ramifications of her actions become clearer and propel her, and Robbie, into drastic action.
Well defined characters, imaginative story telling and plenty of action, including some quite graphic scenes.
A pity nothing nasty happened to Kenny. The drama and tension of the story is lightened by the interaction between Bear and Einstein. A compelling and thought-provoking read with a great ending which serves as quite a warning. The fundamental relationship between a mother and child is explored and begs the question what lengths would or should a desperate mother go to help her child, if the end result is uncertain and a possible threat. Dangers, as well as acts of kindness, to young, vulnerable people are also highlighted.
The complex, often emotive, and ethical issues of animal testing are also explored and show how these animals can sometimes be mistreated, quite apart from the actual testing. Do we have the right to inflict suffering on other creatures? Does the end result outweigh the means to reach it? The story also raises significant questions about the consequences and implications of some forms of medical research and the effect and/or repercussions it could have in everyday situations, and way of life generally.
wise, or attempting to appear wise
of or relating to the human species (Homo Sapiens)
My thanks to Kelsey McBride at Book Publicity Services for sending an e-copy for review
About the author
Jerry Kaczmarowski lives in Seattle with his family. He writes techno-thrillers that explore the benefits and dangers of mankind’s scientific advancement. His first book, Moon Rising, was released in June 2014. His second book, Sapient, was published in April 2015.
Jerry spent the first twenty years of his professional life in the consulting industry on the West Coast. His fascination with technology is matched only by his love of stories. His books intertwine action with a keen insight into how technology will shape our lives in the coming years.
To learn more, go to http://www.jerrykaczmarowski.com/
Excerpt from Sapient
A young research assistant poked his head through the laboratory door and said, “We’re heading out to grab some beers. Want to join us?”
Dr. Jane Dixon brushed aside a strand of dark hair that had fallen from her ponytail. She waved the offer off without turning to face him and gave a curt, “Too much work.” I need to get out of here at a decent time to see Robbie, or I’m going to need to find a new nanny.
“Come on, Dr. Dixon. One quick drink. It’s Friday.”
She sighed and faced him, removing her dark-rimmed glasses. “How about a rain check?” She gave the younger man her best smile, but Jane knew she sounded insincere.
“Sure, a rain check.” The research assistant gave a perfunctory nod and let the door swing shut. Jane wouldn’t receive another invitation anytime soon, which was fine with her.
She put her hands in the small of her back and stretched, yielding a satisfying pop. Not for the first time, she congratulated herself on the regularity of her yoga workouts. They were one of the few distractions she permitted herself. With forty in the not-too- distant future, it was one distraction she couldn’t afford to forgo. She pulled her stool closer to her computer and checked her maze for the final time. She chuckled to herself. After all her years of education, she was reduced to playing video games with rodents. Using a virtual maze allowed her to create a level of complexity unrealistic with traditional animal intelligence testing.
Jane walked into an adjoining room with rows of cages where her subjects spent most of their day. She approached a cage adorned with a garish blue first-place ribbon. Her assistant had put it on the door as a joke. At first, it migrated back and forth as different rats outperformed others. For the past two months, it hadn’t moved.
She opened the cage and made a coaxing motion. “Come here, Einstein.” A fat, white rat dashed out the door onto her hand and scrambled up her right shoulder. His neon-blue eyes gave off an icy intelligence. The change in eye color was one of many side effects of her tests Jane still couldn’t explain. The rat whipped its tail into her hair for balance, hopping from paw to paw.
“Settle down, boy,” she said. She carried Einstein back into the lab with its virtual maze and extended her hand. He raced down her arm to the large trackball and made little jumps in anticipation of the race. As Jane clamped him gently into the metal rig that held him in place, he stopped jumping. Einstein differed from the other rats—he never struggled when Jane locked him in place. The other rats fought against the harness, making it difficult to complete the test preparations.
A two-dimensional overview of a simple maze flashed on the screen. Without hesitating, Einstein rolled through the maze on his trackball, completing the challenge in seconds.
“Too easy,” Jane said. “You don’t even deserve a prize.” Despite this, she stroked the rat’s head and gave him a small piece of cheese. Einstein snapped it up in his front paws. As soon as he devoured it, he pulled against his harness and chattered at Jane.
“Relax, big fella.” She tapped on her keyboard to reconfigure the course before bending down to eye level with Einstein. “Now the real challenge begins.” He stared into her sea- green eyes. The small rodent had the intense focus of a fighter about to get in the ring.
A second maze flashed on the screen. There was a straightforward solution that was long and twisting. A second solution existed, but so far, none of the rats had figured it out. The second path had two tiny virtual teleportation pads. If the rats stepped onto one of the pads, they were transported to a corresponding location in a different part of the maze. For this test, the pads would save precious seconds.
“Go,” Jane shouted, starting the timer. Einstein didn’t budge. Instead, he looked back and forth between the obvious path and the first teleportation pad.
“Clock’s ticking,” Jane said to herself in frustration.
Einstein shrieked as he noticed the decreasing progress bar. A tentative paw step forward cleared the maze overview and put him in a six-inch-high virtual hallway. He waddled straight to the teleportation pad but stopped short. He turned his gaze to Jane as his whiskers moved back and forth, up and down. Jane stared back, willing him to make the right move.
The rat rolled forward on his trackball across the pad. The screen flashed, and he teleported to within a few steps of the exit. With a final glance at Jane, he spun through the gate with twenty seconds left on the clock.
Jane clapped her hands. “You did it.” She reached toward him. He clambered up her arm, slower now that he was out of the virtual world. She gave him a piece of cheese and returned him to the steel table.
“Impressive,” she said to the empty room. At times like this she wished someone could appreciate her triumphs. Her coworkers were at the bar. And Robbie? Robbie is Robbie. The warm smile of a mother flitted across her face as she thought about her son.
Einstein broke her reverie as he scratched and clawed at an iPad on the table. “It’s like having a second child,” Jane sighed to herself. She obliged Einstein’s pestering by starting an old episode of Sesame Street. The classic show was his favorite. Most other children’s programming bored him. His second-favorite genre was as far from the Children’s Television Workshop gang as you could get. One of Jane’s more unsavory assistants had decided to play Rated R comedies on the screen in the evening when the animals were alone in their cages. The crass movies entertained Einstein for hours despite the fact he couldn’t understand any of them.
Jane’s mobile phone vibrated. A message from her nanny read, “WHERE R U!!!” She glanced at the time in the lower right of her screen and gave a sharp intake of breath. I did it again, she chided herself.
“Leaving now. Sorry.” She almost typed a sad face emoticon but caught herself. It wouldn’t be well received. She pushed Send and dropped the phone on the lab table. She pounded the results of today’s tests into her computer, not bothering to correct spelling errors as she raced to enter her observations while they were still fresh.
The phone buzzed again. Jane gritted her teeth at the unnecessary back-and-forth. These nastygrams would only delay her departure. She reached for the phone in frustration, but Einstein was perched over it, staring at the screen. She nudged the little rodent back and set her jaw as she read the text.
The screen read, “Who is Einstein?” As she struggled to make sense of the nanny’s text, her eyes scanned back to the previous outbound message. She juggled her phone, almost dropping it on the floor.
The screen read, “I am Einstein.”
Praise for Sapient:
“The plot is fast-paced, thought provoking, funny at times, and kept me reading to find out what would happen next. I think that the YA audience will love it.” – Dana Bjornstad
“I loved this story and I especially liked its animal characters – Einstein the lab rat with the keen sense of humor and Bear, the one-eyed German Shepherd dog who seems to always be the butt of Einstein’s jokes. And the human characters aren’t half bad either.” – Cheryl Stout
“A timeless, engrossing and perfectly-paced techno thriller about the promise – and fear – of modern medical science.” – Best Thrillers